I was diagnosed with MS in 2018; I had issues with my bladder for years before this. It was overactive and controlled my life, a problem that got worse over time. I was a community nurse at this point in my life; I found my bladder a challenge as I would need to plan where I could go to the toilet. Similarly, I would not drink as I was worried about where I would go. At the time, I was known to urology, who suggested Botox into my bladder; however, I declined as I was concerned that it would have too much of an effect resulting in needing to use intermittent catheters.

In 2020 my bladder became worse, making me feel low. I was referred back to urology, and at this point, I decided enough was enough and agreed to try Botox into my bladder; however, due to Covid, there was a long wait. I proceeded to try intermittent catheterisation twice a day to empty my bladder fully. This made a significant impact on my sleep as before this; I was up and down to the toilet most of the night.

It was life changing when I finally got to have the Botox; admittedly, the procedure was not pleasant; however, it is 100% worth it. I was at a point with my bladder where I needed to go frequently, yet when I went I could not empty properly, which became exhausting. The Botox has put me back in control with using the catheters. I use the catheters a couple of times a day to have a good empty, I can now go hours without needing to pass urine.

On reflection, I regret not having it years ago but was embarrassed and felt like I would be losing control if I had to use catheters. This is far from the case as I have now gained control. Using a catheter is now second nature, much like passing urine normally.

 I hope my experience can help other people feel more confident if they find themselves in a similar position to me.